We can give HOPE to GFPD Warriors!

Meet Anna Violet, she was born with an extremely rare syndrome called Zellweger Syndrome, which is a Peroxisomal Biogenesis Disorder. What this means is the peroxisomes in her cells aren't working properly, are absent or are severely decreased. Some of the symptoms of a peroxisomal disorder are hearing and vision loss, hypotonia, neurological issues, seizures, developmental delay, feeding issues, adrenal insufficiency, leukodystrophy, and liver, kidney, and bone disease.

Currently, there are no effective cures for peroxisomal disorders. Instead, management and treatment of symptoms are crucial to help patients with peroxisomal disorders live longer, healthier lives. A team of specialists to help treat symptoms may include a pediatrician, endocrinologist, neurologist, physical therapist, speech therapist, special education teacher, ophthalmologist and audiologist.

There is a wide range of life expectancy for patients with peroxisomal disorders. Most patients on the severe end of the Zellweger spectrum do not live past a year old, but some patients on the milder end of the spectrum may live into their adult years.

Join us in supporting real change for children like Anna Violet. Let’s support good in the world and help make a difference. Help The Global Foundation for Peroxisomal Disorders support families and children affected by a Peroxisomal Disorder by funding clinical research and trials, assisting with a Medical Equipment Exchange program, Bereavement Resources and empowering an entire community of families that support each other on a daily basis.

Just a small donation will go a long way to helping us meet our goal for The Global Foundation for Peroxisomal Disorders.