Join me for the GFPD Warrior Walk Run Ride on July 9th -12!

Our daughter was officially diagnosed with Zellweger Spectrum Disorder three months after she was born. This condition is terminal and there is no treatment or cure. This disorder has caused her to have developmental delays, sensioneural hearing loss, liver disease, and feeding difficulties. Since her diagnosis our lives have been filled with numerous therapies and doctor's appointments each month. She has endured a handful of hospital stays that have included blood transfusions, scopes, and her latest was for getting a gastronomy feeding tube placed so that we can ensure she gets the daily amount of nutrition she needs to continuing growing.

Despite her current limitations compared to a typical 2 year old, she is one of the most joyful kids I have ever met who is determined to be who God has called her to be.

This organization has been a saving grace in our journey. It provides us with a place where we can ask questions and not feel so alone in our journey. They provide webinars to help us have more knowledge and understanding of her condition which helps us ensure she is getting the proper care she needs. Along with numerous other things, they help fund research so that one day we may have a treatment and a cure.

Join me in supporting families impacted by peroxisomal disorders.

Just a small donation will go a long way to helping me meet my goal for The Global Foundation for Peroxisomal Disorders!