Kylen's Krew Superhero Walk

May 1, 2021 @ 10:00AM — 3:00PM Central Time (US & Canada)

Walk and fun event benefitting the GFPD in memory of Kylen

Kylen's Krew Superhero Walk image

Help Us Raise Money For Peroxisomal Disorder Research and Support

There are currently no tickets available for this event, but you can still make a donation.

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Kylen made us laugh with his bright personality, and he made us smile by just looking at him. He's our first baby, and he was and always will be perfect. His health never affected how perfect he truly is. We would give anything to care for and nurture my sweet boy again. To hold him in our arms, cuddle him, love, and kiss all over him, and just have him here with us, we would give anything to have all of that again.
We decided to host this fundraiser in memory of our sweet Kylen and all other children with peroxisomal disorders, living or not, to help raise money for more research on peroxisomal disorders and hopefully one day find a cure. Additionally, we want people to donate so more awareness can be brought to this condition and what these children have to go through and their effects on them and their families. We want to be a voice for our sweet boy and other children who have gone and continue to go through life with a peroxisomal disorder, as well as their families.

It would mean a lot to us, and we know it would mean even more to our sweet Kylen if people contributed because no parent should ever have to lose their child. No child should ever have to go through something like this without knowing how to navigate this life. No one should be faced with the uncertainty of how much time they have to bond and spend together because of this disorder. If people contribute, that means we're just one step closer to finding out more about this rare genetic condition and possibly a cure. Our wish is that no child has to endure the pain and be lost to a peroxisomal disorder. That No family has to deal with the pain of losing their child to this disease. Instead, more children with a Peroxisomal disorder can live fuller, longer lives, and they, along with their families, can experience everything they should and deserve to.



If you would like to purchase a t-shirt in preparation for the walk, please visit: https://www.bonfire.com/kylens-krew-superhero-walk...